Wednesday, May 6, 2009

Keeping it Interesting

Just when I become concerned that there is truly a lung function issue going on, Lila Grace wakes up screaming mad about the Pulse Ox beeping. The probe had come off of her foot. I picked her up and rocked her and quickly she was off of my lap and coloring with Savannah. The fever was gone, the appetite was back and Lila was much like her old self. We played outside after dinner and Lila was running barefoot through foot tall, wet and yucky grass. She quickly found where the water runs off of our lot and was running though the mud. That confirms it, she's back!

Don't ask me what it was, how she got it or why it left. Maybe it was leftovers from the hole in the wall we visited for Cinco De Mayo. Possibly it is Lila's body telling her that chips and a bowl of salsa is not a "dinner." Who knows. . . I am just happy my baby girl is back and I can go spinning in the morning!

Trying out ponytails for the first time yesterday

You've Got To Be Kidding Me



We woke up this morning just as any other morning. I dropped Savannah at school, put the girls in babysitting while I worked out and raced back home for Lila's speech therapy. Lila was fussy but when isn't she lately. Lila did fine for Miss Kathy. Next, we went to pick Savannah up from school. I randomly added a neighbor's kid to mix and headed out to the mall. Glutton for punishment, I know. I was in search of a swimsuit for the big girl. Lila was still fussy. We ate lunch, everyone but Lila and played on the playground. I had to get on Lila pretty harshly at points because her behavior was awful. I gave Lila a good snuggle before leaving the mall because she seemed like she could use some loves. Next, we ran to the grocery store and that is when I first noticed it.

Lila was limp, laying on me and clearly not happy. She wasn't fussy but her look said it all. Coming out of the store, I notice she was shivering, a lot. I buckled her in and that is when I saw the dusky lips and hands. "Dusky" is one of those NICU words that is forever a part of your "negative vocabulary." I was sure I was not seeing her skin tone correctly. I proceeded to pick up a prescription at Rite Aide when I looked in the rear view mirror. Adeline was nice and pink and Lila was dusky and shaking.

I raced home as fast as I could knowing that the best thing I could do was hook her up to the Pulse Ox. Thank God for that little machine. I put the probe around Lila's toe (she is limp in the middle of the floor at this point) and couldn't get it to work. It has been so LONG since I have had to use the Pulse Ox that I couldn't' remember where I kept the additional probes. I was ready to call 911 because I was sure there was something terribly wrong. Oh, did I mention a 103 fever? I found the extra probe and strapped in on Lila's toe and there it was, 100! I felt so relieved. Lila Grace ALWAYS sats 100. Adeline couldn't if her life depended on it. I gave Lila Tylenol watched her drift off on her bedroom floor and took some Tylenol myself. I was so relieved that I wasn't in an ambulance with my little girl.

I still don't have a lot of clarity about our situation. Lila's fever went up with Tylenol, the shivering has stopped, there is clearly pain in her eyes or a headache of sorts and her sats have drop while her heart rate has increased.

Yep, that is a saturation of 94% and a heart rate in the 130's