Eggs

Thanks to the celebration of Dr. Seuss's birthday, which included green eggs and ham at both of Adeline's preschools, Adeline has become an Eggaholic!  Everyday and every meal she asks for eggs.  Forget the sought after yogurt, she wants eggs.  I limit her to a helping of two scrambled eggs once a day.  It is strange that my child with sensory/food aversions will eat what many typical kids are adverse to.  We will see what a little protein will do to her slight and delicate frame.

Worth Reporting

We can go on family runs again without both parents pushing 75+ pounds in stroller weight.  Previously, we have pushed the twins in one stroller - 100 lbs, and Savannah in a single jogging stroller -75lbs.  It is quite a task.  I remember running with the twins in the double jogger when they were about 15 lbs a piece.  Times have changed and the run has become much harder and less enjoyable.  Well, the girls probably like it more, but the parents don't. 

The change. . . Savannah can ride her bike!!  She rode for three miles the other day which took her out of the neighborhood.  The route includes many hills with a combination of roads and paths.  She tackled the hills and kept ahead of us the whole time.  She was pretty proud of herself and so were we. 

In the end, not much has changed for daddy as he is still stuck with the double jogger but I run hands free!!  That only took me six and half years to achieve.  Now let's see how long it takes the twins to ride their bikes.  For some reason, I bet Lila will be pedaling beside us next year.  Only time will tell.

Good Bye Grammy

We had a great three weeks with Grammy. The girls really adore her. We love her lots and miss her already.

Double Trouble

Seems that Adeline has been spreading some germs around. . .

Hospital and Home

Adeline had a hard time bringing her sats above 90 this weekend which sent us to the ER.   Thankfully,  her pulmonologist was on-call again.  We were triaged immediately and sent directly to a room.  After taking a quick peek at Adeline, the first doctor mentioned that we should prepare for admission.  I knew that would be the case.  Adeline, at the time, required an oxygen flow of 3 liters which is pretty strong and usual.  Luck was on our side, and Dr. Chidekel (our amazing pulmonogoist) made it down to our room.  Adeline was all smiles and presented as a shining star.  After seeing that she was in good spirits, he was confident we could manage her needs at home. I just need confirmation that we weren't being negligent by keeping her at home rather than monitored in the hospital. 

We were out of the ER in 2.5 hours which is record time!  Adeline was very happy when we got home.  Little did I know that my other two would be running fevers when we arrived.

Heard from the Sick Girl

Smoke is going in my nose  (from cannula)

My string, my string  (when her tubing gets caught on something)

First, listen to my heart (when being examined by the doctor)

I want to go bye bye in Mommy's car (tired of being house bound)

Lung Infection

Adeline has been fighting on and off fevers, some as high as 103.5, and a pretty bad cough for a week and a half.  Neither of these symptoms are out of character for Adeline so I didn't take her to the doctor.  I have learned over the past couple of years that the girl has some pretty stellar lungs.  Yes, they have BPD but they haven't given her any problems once she kicked the O's.  She has landed in the hospital for upper airway inflammation and obstruction due to mucus but never for lung function.

This time I was wrong.  I didn't want to push into the weekend without our pulmonologist listening to Adeline so Alex drove her down to duPont yesterday afternoon.  Our pulmonologist was in a deposition and couldn't break free which left us under the care of a new doc.  Adeline was satting in the low 90's which was surprising.  We have a pulse ox at home but I rarely put it on her because her sats are ALWAYS within range.  Adeline was also x-rayed to rule out pneumonia after the doc heard some noise in her lower lobe.  It ends up that she has a lung infection but not pneumonia.  We were told to manage it over night and get in touch with our pulmonologist in the morning. 

We didn't make it that long.  Adeline was satting 88 when she went to bed last night.  It took a 2L flow to get her up to 94, 95 and above being the safe range.  We called our doctor and he was very surprised that Adeline had such an oxygen requirement.  After a lengthy discussion, we felt comfortable managing it home with our doctor a phone call away.  The only other option was admission to the hospital.  Luckily, our doc let it be our call.

Adeline fought the cannula and pulse ox probe but, once reasoned with, accepted her fate.  She has been a trooper.  We are all out of practice when it comes to the O2 equipment and dragging around a 50 line of tubing is less than desirable.  We have our fingers crossed that we stay out of the ER this weekend and that Adeline is off the O's by Monday.

Here are some pictures of The Belle and her cannula.

I wasn't prepared to come home from work and see my girl on oxygen. She was miserable.

We finally got her to sleep and she slept the whole night through. She woke up very happy which makes me think she was enjoying her easy breathing.

How do you tame hair this wild? A stocking cap, even if it is 65 degrees (she can't stand hair blowing in her face). Her batting session didn't last long and soon she was asleep in a stroller.