Sunday, September 21, 2008

It's That Time of Year

We woke up to this


And went to bed with this


In between. . .

103.9 fever
vomiting
Savannah stepping out of the room to pray for Adeline's speedy recovery(such a sweetie)
writhing in pain
Heart rate of 190
Sats 90

So. . . I am gearing up for a tough week ahead. Adeline and Savannah are my fever queens. I am sure Savannah will catch this and run with it up to 105. Let's just hope it doesn't happen on her birthday like last year (9/28).

Luckily, Adeline was able to keep down the Tylenol which allowed her to take a few walks around the cul-de-sac in the stroller. Every time we stopped, she said, "Go!" It was better than watching her tug at her cannula and say and sign, "All done" over and over again.

Here is hoping for better tomorrow. Maybe Savannah's prayers will be answered. She is sitting at the island making get well decorations for Adeline's room.

This one is a picture of God and Adeline. God is giving Adeline love (the heart) and an Easter Egg. I love the ponytail in Adeline's hair. Savannah is such a sweet little artist.

Saturday, September 20, 2008

Feeding Clinic

Yesterday, I spent the afternoon with Adeline at the Hershey Feeding Clinic. Her speech therapist also accompanied us which was above and beyond the call of duty. We met with Dr. Williams and discussed Adeline's food routines and food related behavior. It was hard to describe how hard she could be during a feeding when she was a sweet angel for the two plus hour consultation. By the end of the visit she was curled up in the doctor's lap saying, "Hi!"

After spending much time discussing her eating habits, Dr. Williams placed her in a high chair with yogurt, applesauce and bread on the plate. I informed him that she really likes matchbox cars and that is what he used for motivation. He would take the tiniest bite of bread and place it on the spoon. After telling her over and over again that she had to take her bite if she wanted to play with the car, Adeline would finally give in. She wasn't real willing but she wasn't fighting him as hard as she does me at home. Each bite was followed by time playing with the cars. The car would be removed after 30 seconds or so and the process would start again. The timer was set for 15 minutes and when it beeped she was done.

In the 15 minute minute time period, Dr. Williams was successful at getting Adeline to eat all three foods. There was very little caloric value due to the small quantity but he assured me that practice makes perfect. She will eventually like food, stop gagging and WANT to eat. He does this day in and day out so I guess I will believe him.

After her feeding we went back into the consultation room and talked about family mealtime. I told him it was the most stressful part of my day, especially dinner. When most families are finding relief during dinner, I am low on patience, fighting three kids to eat food they typically don't want to eat and doing this on my own as there is no Daddy at the end of our day. This lead the conversation to both Lila Grace and Savannah. Both girls contribute to the stress. Savannah never wants to eat what I cook and Lila Grace is either hot or cold. Some days she will shovel it in and then want down in two seconds and other days she will scream and tantrum over what I put in front of her. Dr. Williams wrote a plan for both:

Lila Grace - When behavior isn't acceptable put her in time out for five minutes. Let her come back and try again but adhere to a "three strikes you're out rule." He promised she would learn to sit quietly for 15 minutes. I am not supposed to push her to eat if she doesn't want to.

Savannah - She is supposed to try pea sized bits of all our food. If she doesn't like them she doesn't have to eat it. The only after dinner snack she can have is fresh veggies and fruits. No more bowls of cereal and bars. She is what he considers a classic "avoider" by using a bowl of cereal as her supplement to dinner.

The above sounds great but putting it into practice is another issue. I will give it a week and see where we are. I think Lila is still going to exhibit behaviors that put me over the top.

Once I have the other two under control it is his belief that I will have a nonstressful environment and at that point I can turn my focus to Adeline. I think he is simplifying the stresses of dinner time or any meal time for that matter but I am going to try.

Adeline's plan is as follows: Decrease the amount of Pediasure she receives through a bottle. Set the timer for 15 minutes and use pea sized bites of a variety of foods. Gradually grow the bite when she is no longer showing refusal. Eventually, she is supposed to self feed. Boy, won't that be the day!

Dr. Williams thought Adeline would resolve most of her issues in a week's time if admitted to the day treatment program. However, he didn't admit her. Due to the family dynamics of the meal, he felt that there wouldn't be any carry over when brought back into the natural environment. Thus, the intervention must be done at home! Yikes!!

I don't know how I am going to do this on my own. Dinners are a disaster, breakfasts are all of five minutes and then we are rushing to get Savannah to preschool and lunch is squeezed in between preschool pick up and therapy. It isn't like we have all day to work on feeding. I understand his point though. It has to be done at home because there are so many behaviors that are tied into her successful outcome. Savannah and Lila are going to have to step up to the plate in order to allow me to have time with Adeline - undistracted time that is. Any mother of three kids four and under knows how how tall of an order that really is.

Keep your fingers crossed for us.

Thursday, September 18, 2008

Words are Emerging

Adeline is finally talking!! I couldn't be more excited. We have moved away from signing and are now working on vocalizing. She gets it!! Adeline concentrates on my mouth as I say a word repeatedly and then with a little grin she tries to say it back. Most of her words only I can understand but that doesn't matter one bit. She understands the purpose of language and she is applying it to her everyday life. Words she has recently picked up:

Sticks (veggie sticks)
no
yogurt
Charlotte
night night
car (she transitioned nicely from the sign to using the word)
Oscar
Cookie
Ernie

I am surprised how much influence Lila Grace has on Adeline's speech. I figured most of the learning would be done when observing Savannah. Today, as we were pulling away from Charlotte's house Lila Grace was saying, "Charlotte, Charlotte." Adeline chimed right with her own version of the name.

Wednesday, September 17, 2008

Sisterhood

Today, when unbuckling the girls during preschool pickup, Lila Grace grabbed Savannah's Bunny from her car seat and yells, "Anna!" She hops out of the van and walks very purposefully (holding my hand of course) to the school's door. Once in the basement, I let go of her hand and she ran right for Savannah's classroom. She got a bit confused and poked her head in the wrong door and then was thoroughly confused by the door being shut to Savannah's class. She ran around the large room and looked in every classroom in hopes of finding her sister. Once the door to Savannah's class opened, Lila darted in and handed Savannah her Bunny. She was so proud. She can be so sweet.
Even better is watching the two of them navigate the parking lot hand in hand. Lila behaves much better for Savannah than she does for me.

Heaven Post 2,398 - or so it seems

As we were driving to preschool this morning Savannah asks me, "Why is daddy older than you?" I told her that he just is. Well, that wasn't good enough so she answered her own question with, "Is it because he was in Grandma's belly before you were in Grammy's belly?" "Yes," I say quite impressed that she GETS it. Savannah then tells me that she thinks babies are actually BUILT in heaven and then put in the right mommy's belly. I grin and think to myself, "She is so stinkin smart!"

Tuesday, September 16, 2008

A Perfect Morning

The more I thought about it, the more I was convinced that this was a perfect morning. I dropped Savannah off at preschool and then strapped the babies in their jogger for a run - more like run/walk since I haven't done it in three months! They sat for 40 minutes without a peep. Once we got home, I let them play outside while I stretched out and talked to our new OT about scheduling. Again, not a peep. I looked at my watch and decided I needed to shower so I brought the girls inside and locked them behind the gate. Oh, I love the gate! I even turned on Elmo's World since it was just starting (I am working very hard on not feeling guilty about it) and took a nice long shower. Not a peep!

I am now in the office writing this post as the girls are laying on the couch/floor of the playroom. They are happy to relax for a few minutes before we pick Savannah up.

I don't know how I got so lucky but there is something magical about the gate during morning hours. We usually have therapy or I have errands to run but on mornings I don't, they just play without me. I need to remember this morning and commit to running and make my reward, time behind the gate! I just wish the gate worked during evening hours.

Monday, September 15, 2008

Do I Dare Say, "On the Charts!"

Not something I put a lot of stock into but being on the charts is better than being off of them. At age two, both girls made the leap and are tracking on the charts for both height and weight. Lila Grace is holding strong to 10th percentile for weight and 25th percentile for height. The Belle is holding tightly to the 4th percentile for weight (I realize she could fall off very easily) and 5th percentile for height.

Adeline and Lila Grace are still the size of a 12-18 month old child and most often appear MUCH smaller than their peers. I am okay with it. Being small and thin has its advantages. I can snuggle them like babies much longer than the average child.